Tuesday, January 18, 2011

The diagnosis post

We took my daughter to get her official diagnosis a little bit ago and it is only fair that I should finally post the results.

The doctor is unsure because while she had some damage to her intestines earlier they were healed this time.  The blood work and by her reaction to gluten he still thinks that she has Celiac disease. He thinks she is one of the few people with it that it does not attack the intestines and instead it attack another organ in the body.  (Yeah that was news to me too).  She could also have a strong allergy and that puts her at risk for a whole new set of problems.  The only way to confirm the true diagnosis now would be to put her on a diet containing gluten for 6 months and the cut her open looking for the organ that it is eating away at.  We declined at this time on that option. Since we do not know if the organ such as the brain, heart, lungs, or so on that would be eaten away at can repair itself like the intestines would.  It is a option I would not like to have to take.  If we do I want her to be older then 3 yrs old.

Thank you for waiting so long on this post.  I have been dreading writing it.

I need your feedback and help pls

So how do you deal with going out to eat?  do you wipe down the table with a wet nap to make sure you do not get contaminated?

How do you deal with going to Chuckie Cheese or a McDonald's  playground?  It is a place that other children who have been eating all kinds of gluten are now smearing all over the play equipment and possibly you and your child.

These are the types of little things that my husband and I are now debating.  We do not want to keep our child in a bubble or make her feel "special" but I want to keep her safe as well.

So please all you moms out there tell me your thoughts on it or how you do it.

Monday, January 3, 2011

Books to buy for the new year

Happy new year to you all. I have several wish for all of you in this coming year.  That health comes to you and yours with ease.  That the public becomes more Gluten conscious everyday. Last that a cure is found ( If you are going to wish it should be big right ;-) )

It is the new year and that means it is time to SHOP!!!!! This is what I am excited to buy 
Books: one of these is a must have IMO

Here are more books that can be useful depending on your lifestyle:

Here are some Kindle versions of books that can useful depending on your lifestyle:

Restaurant guides:

The Kid-Friendly ADHD and Autism Cookbook: The Ultimate Guide to the Gluten-Free, Casein-Free Diet My child does not have ADHD or Autism but I still found this book helpful.  It was useful tool to help me learn what can help replace what when baking and how much you need to use which is HUGE!!!!

Gluten Free College Student Cookbook Great for teaching your preteens and teens before they go too.  Then they can just take this with them 

IMO This is HUGE if you travel a lot!!!!!!!!!


Another must have IMO tons of information packed into this baby so it is well worth your hard earned money.

There are a TON more GF book, Cookbooks, and magazines out there and I can't wait to read them.  Most of these books I sadly do not own I just borrow from the library or sit and read in a book store when we have to travel to see a doctor. The moment I read/buy more I will let you know.   

If you are a author of a book, cookbook or magazine  would like to have me to read and write on your book or if you manufacture a GF product and would be interested in having me  write a review on my site Please contact me and I would be happy to!