So the move is over and the real work begins

I have been working on enrolling Phia in school and getting us enrolled in the new Tricare system down here this week.  I have to say this is when I get nervous before I meet the new doctor.  I keep telling myself it can't go anywhere but up from here and in truth they do have so much more to offer her at the base alone not to mention in Pensacola as well.  Still The protective mother bear that has had to fight to get even blood test done for her the past few years feels like she is pacing inside of me.

Her Pre-K teacher  seems happy to work with anything she is handed so I am hoping that if I give her the school supply list of things she can and can not have  (as well as providing the supplies) then she will not have a problem.  The school has works with allergies and since it is a private school there will be less children.   So I am hopeful.  Still looking up and calling different companies to check if they are GF since most of the ones that are pre-written are from '09.   Hopefully when I am done I can make a list and post it for you guys to use too.

here are some links to other useful information , tools, or letters that will help with educating the school and teacher on your child's illness.


Assisting a GF child a letter to educators a letter from the doctor to the teacher

Letter to educator 

www.celiaccentral.org/SiteData/docs/504 Plan R/fcd141e36d5775c0/504 Plan Roadmap for the Accommodating...a Student with Celiac Disease - 2011.pdf    the 504 plan if you do not know is part of the disability act and your child has to have a 504 diagnosis to participate in it.  This is a wonderful thing if you or your child is a simple straight forward case it will help you so much!  Unfortunately most of us do not have a simple diagnosis to qualify for this but if you think you do ask your doctor if you have a 504 diagnosis.

I get asked what gluten and Celiac disease are almost everyday

I really don't mind being asked.  I would rather have someone ask me then be afraid to ask me fearing it was rude.  IMO It is not rude!  No one can know everything in this world.  Pretending that you do know what something is when you don't can get someone hurt. So I appreciate it when another parent takes the time out of their life to ask what gluten is or what things she can or can not have.  I think it would be rude of me not to explain what they are or become upset when asked.

I would like to give a good explanation here so people can always come here to figure out what it is.  I hope to give you several links to read and explain in my own words as well.   Please feel free to post any comments of your own.

Gluten, in its most simplest definition, is a kind of protein that tends to exist in wheat, barley, and rye among other carbohydrates. Gluten comes from the Latin word Gluten meaning "glue" .  It gives elasticity to dough, helping it to rise and to keep its shape, and often giving the final product a chewy texture.


It is important to know that Food is not the only place that Gluten is found.  Gluten can be in: Soaps, Shampoo, Alcohol, Pet food, Pet Shampoos, Make up, and many more If you plan to have someone in your  life regularly and want close contact with them don't be offended if they ask what make up or any other items listed you use.  Some Celiacs suffer from more severe or different sensitivity then others. So they may not be bothered at all.  Mine daughter is bothered by skin products though so it is something I do have to ask or I send soaps and shampoos with her.  I have even brought our own laundry and dish soaps with us while traveling to keep this to a minimum. 


Some helpful sites to understanding more about gluten 

• How gluten is used
• gluten what you don't know might kill you

Some helpful sites if you are having someone with Celiac disease or anyone eating GF over and want to know what they can and can not have 

• http://www.csaceliacs.org/gluten_grains.php

Understanding Celiac disease better


Celiac disease is a digestive condition triggered by consumption of the protein gluten, which is found in bread, pasta, cookies, pizza crust and many other foods containing wheat, barley or rye. If you have celiac disease and eat foods containing gluten, an immune reaction occurs in your small intestine, causing damage to the surface of your small intestine and an inability to absorb certain nutrients. It really destroys the  villi—the tiny, fingerlike protrusions lining the small intestine. Villi normally allow nutrients from food to be absorbed through the walls of the small intestine into the bloodstream. Without healthy villi, a person becomes malnourished, no matter how much food one eats
Eventually, the decreased absorption of nutrients (malabsorption) that occurs with celiac disease can cause vitamin deficiencies that deprive your brain, peripheral nervous system, bones, liver and other organs of vital nourishment. This can lead to other illnesses and stunted growth in children.

No treatment can cure celiac disease. However, you can effectively manage celiac disease through changing your diet.


Along with Celiac disease comes many other problems so please ask if there are any other dietary restrictions. 


  


FRUITS:
All fruits are gluten-free (unless they have been combined with or are packaged with gluten containing ingredients)
BEVERAGES:
water, water, water, 100% juices, milk, tea, coffee, and water :)


VEGETABLES:
All vegetables are gluten-free (Be cautious of floured or breaded vegetables, or those in sauces) 

Please note that you can buy all the expensive food you want for when your friends come over but if you put the GF bread into your toaster that you use for your bread It has now been contaminated and can NOT be eaten.  If you are wanting to use p-nut butter buy a small new jar for them to use so that the crumbs from your bread are not in it causing the food you cooked to be contaminated.  

It really is not that hard once you know what you are looking for.  Many items can be bought at your local store that are GF.  Many people that have Celiac disease bring food that they can eat and that others will like as well when they go to public functions.  Just keep in mind to use the utensil for their food only and not mix and match.  I never show up somewhere expecting people to cater to my child's needs.  I am always grateful if they do but I think it is rude of me to EXPECT that of people.  I also bring enough of what I bring for my child for the others that will be there and I try to explain the handling procedures of the food so no cross contamination will take place.

Links to different safe food lists. Also just a good learning site in general.


There are more GF link listed on my Links page. Feel free to contact me with any information or questions that you have.  I am not a doctor and can not diagnose you sorry.  I am a mom with a blog trying to share her knowledge and make life a little easier for someone else.

Still working on links but more are up

While I am trying to figure out our new lifestyle I guess you would call it and not a diet since it is for life. I am also trying to get things ready in case we move shortly after I have surgery in Oct. so life is a little hectic.  

Some of the links are up

Sorry for it taking so long but I just got my laptop parts in today.  I have to say it is so nice to have my own computer back even though I email my bookmarks to myself monthly so I can access them  during moves, if the computer crashes, or if I am at a friends and they need something.

The only problem with being a bookmark hoarder is that some of them are no longer working.  I am trying my best to sort through them for you and organize them but if any of them are not working for you please let me know.  Also please feel free to send me your links.  I have only put up craft links so far but I have money saving, computer, camera. cooking, weight loss, military, Pinup, quotes, books, and more. I am glad I am a virtual hoarder and not one in real life or I would be in real trouble. lol